About Gracie

gracie-june-07

Gracie

Gracie is a 8-year-old who loves to cook, do crafts, read, eat popcorn, wear anything pink, and go to school.  She’s an incredibly intelligent girl who has a lot of personality and is a total sweetheart!  Her family consists of her parents, May and John and her older brother Jack (9) and little sister, Bella (4). 

Diagnosis and Treatment

In March 2008, Gracie was diagnosed with a brain tumor – a low-grade brain stem glioma. 

2009 was a year full of treatments at Cook Children’s Medical Center in Ft. Worth, TX.  After the diagnosis in 2008, surgery was done to see if they could remove any of the tumor.  They discovered that the tumor had grown like a web through parts of her brain, especially around her brain stem and spinal cord. They were not able to remove any of it and recommended chemotherapy and radiation as treatment.

Gracie underwent both chemo and radiation like a champ.  Unfortunately neither has stopped the tumor’s growth and the latest MRI showed that it is still slowly growing.  The Kelly’s have sought out further advice from other leading hospitals in the country but at this time, Gracie has already received the treatments that could possibly help cure her.  As of May 2009, she began receiving hospice care.

In the summer of 2009 the Kelly’s spent time  traveling and enjoying time away from hospitals, appointments and tests.  They visited Galveston, TX, Orlando & Disney, several places in North Carolina, California, Oregon and Chicago where they spent a lot of time with friends and family.

The Network of Support

They have received an amazing amount of support from John’s co-workers at American Airlines, several churches, including their own (Gateway), their Awana group, the staff and students at Whitley Elementary school, Make-A-Wish Foundation, the Forever Trinity Dream Foundation and from so many friends, family, and even strangers.  So many of these friends and others have helped raise thousands of dollars to help the Kelly’s with their expenses. 

This blog tells Gracie’s story and is updated by her aunt (Leah), May’s sister. 

Gracie loves reading your comments so drop a note and say hello!  We hope you’ll join us in praying for Gracie.  Our hope is in God.

Jeremiah 29:11 -For I know the plans I have for you declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future.

UPDATES 

As of April 2010: Gracie’s condition is good!  She’s physically strong and experiencing less problems physically than she was a year ago.  She still has palsy on one side of her body, but she is now able to walk, eat and do many things on her own that she hadn’t before.  She also started attending school again!  She goes to her 2nd grade class 3 half-days a week and receives tutoring at home one afternoon a week. 

27 responses to “About Gracie

  1. Evelyn Penn

    Gracie’s story first came to my attention last June, when Emmanual Episcopal Church in VA Beach, VA hosted the annual spaghetti dinner fundraiser in her honor. Her cousin, Cory, was my granddaughter’s preschool teacher. What a great event it was. Because God has his own plans for Gracie, this year’s dinner will also honor Gracie.

    My prayers are that Gracie’s coming days will be fun ones for her, and she will be as comfortable as possible.

    I’m sending blessings your way for the sweet little girl in your lives.

    Evelyn Penn
    Fredericksburg, VA

    • hidy garcia

      hey gracie, its me hidy from school, thank you for the bracelt. I love your blog! see you at school. – Hidy xox

  2. Lori

    I came across this blog and i cant stop reading it! What an AMAZING and BEAUTIFUL young lady Gracie is!! You cant help but fall in love with her!

  3. Pat Holden

    Thinking of you all, as any friend of the Larmore’s is a friend of mine! Read your blog and know that as a former hospice chaplain, this is a rich but bittersweet time. May you continue to be filled with God’s grace and love which is all of your birthrights! Gracie will always be with you. Get a “contact point” , e.g., the moon…”When I look up and see the moon, I will blow you a big fat kiss….” I will talk to you, etc. Children know so much more than we give them credit for! Special love to you all. Courage for the journey and whatever measure of peace you can manage to store! Love, Pat Holden

  4. Jennifer Hallauer

    Gracie,
    You will never know how many people you have touched but there are so many people all over the world thinking about you and praying for you and your family. We are so excited to be able to meet you in a week or so, such a brave one you are. You give so many strength and courage. Remember how many people out there love you, even ones who have never met you.
    Have a great trip and until we meet keep smiling, its contagious!!
    Jennifer Hallauer (friends with Kory)
    Virginia Beach

  5. Have you tried a Hyperbaric Chamber it increases barametric pressure and oxygen. In essence it creates a preflood enviroment and turns the body into a healing machine. It could heal her

  6. Mary Prewitt ( Your Nurse Advocate)

    Dear Kelly Family,
    What an Amazing Journey you have been on!
    When I first heard about Gracie, she instantly had a special place in my Heart 🙂
    I feel so blessed to be able to watch your journey. Thank you for sharing such precious moments with us, the number of lives touched is countless!

    As I navigated the website and look at pictures of Gracie and her family, it is very evident to me that God has his loving arms wrapped around all of you!
    Remember “He will never let go”

    My Life verse is Jeramiah 29:11
    “For I know the plans I have for you Declares the Lord……”

  7. Mary Prewitt ( Your Nurse Advocate)

    I forgot, I can’t wait to meet all of you in Chicago!

  8. Heather Montgomery

    I first heard of Gracie’s story from a flyer that was sent home from my son’s school, Whitley Road Elementary. Our thoughts and prayers are with you and your beautiful family.
    Gracie, you and your family are forever in our prayers.
    Best Wishes,
    Heather Montgomery

  9. Gracie has been in our prayers every day since we first learned about her story from a family member. She is such an inspiration and reading her website gives me such huge encouragement from such a small child. She has a lot to teach us and from our family to yours…lots of hugs.
    The Steward’s

  10. Hi Sweetone
    Thinking of you and hope you are enjoying
    the summer, hope you got to go back to N.C. to
    visit your grandparents and enjoy the ocean. We enjoyed having you here in Illinois it was fun cooking for you!! All of us here sent our love and prayers to all. Zoie send’s a big mushy kiss to Gracie,Jack, Bella.

    love Greatgrandma Kelly

  11. Blynda Lane

    I know that you all don’t know me and I’ve never met your family, but I want you to know that since May when I first heard of Gracie, I’ve been praying for her and all of you. I have enjoyed getting to “know” her through her pictures. She is so beautiful and has so much joy. As you’re walking through this journey, I just wanted you to know that Gracie is touching so many people’s lives. People you may never know about. I would’ve been one of those people if I hadn’t written. Through Gracie, I’ve been inspired to see joy in all things, I’ve been reminded of hope in a big God, I’ve been encouraged about walking through trials and I’ve seen grace in the face of a sweet girl. I’m blessed to know Gracie if only through a website. My prayers are with you. Be blessed!
    Blynda Lane

  12. Lorraine Bucemi

    “Where there’s hope, there can be faith. Where there’s faith, miracles can occur.”

  13. Heather Witkowski

    Hello Sweet Gracie,

    It’s me “Miss Heather” you remember …from Pre-School at the Watauga Community Center. I wanted to let you know that I enjoyed very much, being your teacher then, and it was so nice to see you again at the beginning of this year when your sister Bella came to meet Miss Rebeca. You are a very special little girl and you are loved by so many people, including me! Tell your Mom I am praying for you, and your family. I love your bracelet…pink and purple are my favorite colors too! I will wear it everyday, it will remind me of how precious life is and how precious you are!! I hope I get to see you again sometime soon.

    God Bless you Gracie!!

    With Love,
    Miss Heather

  14. Preslie Reynolds

    Hello Gracie,

    This is Miss Preslie from pre-school at the Rec. Center…Your sister Bella is in my class. I dont know you very well but im touched by your story. And i am praying for you every single day! Live your life to the fullest!!!
    🙂

    Lots of Love
    Miss Preslie

  15. Jeni

    My family will continue to pray for you and your family. Gracie went to pre-K along with our daughter in watauga.
    Love,
    Jeni

  16. Hello Sweet Gracie,
    I am a volunteer with the Friends of Jaclyn foundation. My job is to make sure your “adoption” to your new family, the University of Dallas softball team, is something very special!
    I will be in touch to find out some of your favorite things. You are such a brave girl – I look forward to getting to know you better!
    Sue
    sue@friendsofjaclyn.org

  17. Belle Swaja

    Hi Gracie! My name is Belle Swaja and I help coach the softball team at the University of Dallas. I hear you are going to be coming around to be our little helper! We are all very excited to meet you and have you become part of our softball family. You’re in our thoughts and prayers! See you soon!

    God bless,
    Belle

  18. Rachel Hanson

    Hi Gracie! This is Coach Hanson, with the University of Dallas Softball team. Our team is so very excited to get to know you, Jack, Bella and the rest of your family! We’ve been learning a bit about you through this website, and we’re already very proud to call you a part of our team. I’m glad to read that you’ve been enjoying going back to school. Our girls are ready for a break from school – we leave tomorrow for a softball trip and we’ll be gone for a week. We’re looking forward to meeting you when we get back!

    See you soon,

    Coach Hanson

  19. Amber Adams

    HI GRACIE!!!!!
    I’m Amber and I play for the UD softball team. We’re leaving for our trip tonight, but I wanted to say hello before we left!!! I’m a senior so I’m extremely old and I play centerfield. I saw that you like eating popcorn..it’s one of my favorites too. Eating in general is one of my favorite activities, but you might have to show me a thing or two about cooking because I can eat but I sure can’t cook! Have fun at school and see you soon! I’m so exicted.
    -Amber #4

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  22. Amber Conner

    Thanks for spending the afternoon with us Gracie!!
    Love,
    University of Dallas Softball 🙂

  23. Donna Logan

    Hi Gracie,
    I met you at the CUBS spring training game a week ago. We sat behind you. My girlfriend gave you her CUBS bucket hat to wear. I am from Iowa. We are staying in Mesa for about another three weeks. I really enjoyed meeting you and your family. My thoughts and prayers will be with you from now on. You are a true inspiration to all of us.
    Love,
    Donna Logan

  24. i think you are a smart girl and we are classmate in gateway environmental. and i am happy to learn more about your family and you.

  25. Jayllen

    Hi Grace stay strong 4ever old classmate ~Jalen

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